tenth chemo - my nurse is better than your nurse
Monday, July 30th, 2007I really sounded thrilled about my 9th chemo session going so quickly and efficiently, but after this 10th session I see that it had everything to do with making an earlier appointment and having my blood work done the previous Friday. My substitute nurse, Nicole, was indeed quite efficient, no question. She was subbing, though, and made no real effort to get to know me. Don’t get me wrong, she was polite and courteous, but slightly curt. Some people might have been offended, but Todd was there, so it’s not like I was alone and needed or wanted someone there to talk to me. I see this as Nicole being considerate to Jackie, not trying to hone in on her patient, as it were.
Which leads me to this week’s chemo, my 10th session. My nurse, Jackie, is the best. She’s been an oncology nurse for a long time, she knows so much, she has kids who are older than me, but she doesn’t look or act like it, and she not only lets me be the goofball that I am, but she seems to actually appreciate it. Either that or she’s a great actor, but it doesn’t matter because she puts me at ease and makes my treatments go smoothly. She and my clinical nurse, Sue (the one who let me know it was definitely unusual to want that “gross photograph”) are awesome.
For me it really is all about the people. That’s why I’ve had the same dang go-nowhere job I’ve had forEVer. It’s a good job and all: it pays fine and it has become not-so-painfully evident that my benefits are outstanding. But I’m not in any position to “move up” unless I go to law school and I’m not interested in becoming a lawyer. I chose to work where I do because I’m organized and learn quickly, and because what I really want to do is sing. This job pays the bills. Certainly one could say it was naive to think my band, one of thousands of local bands, could make it big, so to speak, and I agree, but I still intend to sing. I’m considering session work, too. Much as I love writing and playing original music, I’m at my happiest singing in general.
Hello, tangent! Back to my original thought.
The thing is, I’ve stayed where I am for so long because I love so many of the people I work with. They’re like family to me and they make me feel, for the most part, that I can be myself. I chose BIDMC’s cancer treatment center for some of the same reasons. The nurses are all wonderful and caring and mine in particular, is fabulous. How could I face the reality of these toxic drugs without them, without her?
I just read an article in Harper’s June issue (yes, I’m behind, I always am w/Harper’s) called “Chemo World: Surviving the cancer unit” by Sallie Tisdale. She’s an oncology nurse at a treatment center at the Portland Medical Center in Oregon called 5-K. This treatment center is quite different from mine in that it sounds like most of the patients there are worse off than the ones I see. Maybe I’m being naive now; I only go once every two weeks and see many of the same people each time. They don’t seem so bad off, but who knows? Hell, I look and seem hale and hearty until I sit down in that chair, get pierced in my chest and then sit for a few hours while IV bags pump drugs into me. Who would guess?
Anyway, this story was especially poignant to me, as you can imagine. I found myself crying a few times as I read it last night before bed. She describes many patients’ personal experiences and writes about how little any of us know about cancer and chemo and its effects. Here’s an excerpt I found especially interesting and moving:
I asked Christa, who had lymphoma, what she remembered about being told she would need chemotherapy. “Oh, just the word ‘chemo’ - just the idea of chemo,” she said. “You’ve heard the most frightening things.”
Just that word, “chemo”: an insider’s word, diminutive, familiar. “Chemotherapy” actually means “any treatment with medicine,” but in modern parlance it means only one thing - the cytoxic drug. And what a word - the root, chem, has the same Greek source as the word “alchemy”: the search for a means of prolonging life, a universal cure for disease. The search for transmutation. My friend Sylvia, who survived Hodgkins disease, said of her chemotherapy, “It’s like going to a foreign country you’ve heard a lot of bad things about and never wanted to visit. And then you have to go there.” After Sylvia said that, I began to call it Chemo World.
Later in the article she writes:
Chemotherapy can be horrible and it can be a breeze, and it is usually something in between. The side effects I’ve listed here are horrible; I find them hard to read. Is the life that follows the reward for all this suffering? Or is the difficulty itself a gift? I know that people suffer here. They also survive. Their hair falls out and then it grows back. They throw up, they lose weight, they feel weak, they feel embarassed and then they get better. People get better. People get well. People go home.
As I read this memoir I did feel pangs of self-pity now that I’m a member of this getting-less-exclusive-by-the-day club. I also, again, felt lucky. None of my doctors know for sure that they got rid of all the cancer in my body. We may never know, which is why after all of this chemo I’ll still be getting checked every six months. I am lucky, though, for all the reasons I’ve written out so often. No doubt there are more reasons I’ve yet to uncover, but I’ll find them.



